Sickle Cell Awareness Month: In CJs Honor

CJ with his family on Senior Night.

September is Sickle Cell Awareness Month — a time to raise our voices, share knowledge, and build awareness around both Sickle Cell Trait (SCT) and Sickle Cell Disease (SCD). For our family, this month carries deep and personal meaning. Our son, Calvin “CJ” Dickey Jr., was just 18 years old when he collapsed after his first college football workout and passed away two days later. He carried Sickle Cell Trait, and in those two days, he experienced what patients with Sickle Cell Disease may endure over a lifetime — muscle breakdown, organ failure, and immense pain. We share his story not only to honor CJ’s life, but to help ensure no other athlete or family has to face this kind of tragedy.

SCT vs. SCD: Why Awareness Matters

Many people don’t realize there is a difference between Sickle Cell Trait (SCT) and Sickle Cell Disease (SCD):

Sickle Cell Trait (SCT) 

• One sickle gene + one normal gene 

• Usually does not cause illness 

• But under extreme conditions (intense exercise, dehydration, heat, high altitude) serious complications may occur

Sickle Cell Disease (SCD) 

• Two sickle genes 

• Causes chronic illness: pain crises, anemia, organ damage 

• Requires ongoing medical care and treatment.

Having SCT does not mean an athlete cannot compete. It means they must know their status, take precautions, and have coaches and trainers who understand the risks. With proper education and awareness, tragedies can be prevented.

Why Athlete Safety Must Come First

CJ’s story highlights the urgent need for awareness, testing, and safety protocols across all levels of sports — from middle school to high school to college. Too many athletes have been lost because sickle cell status was overlooked or not widely understood.

• Athletes & Parents: Know your status. Testing matters. Visit the NCAA Sickle Cell Guidelines to learn more.

• Coaches, Trainers, & Administrators: Educate yourselves. Adapt workouts. Ensure hydration, rest, and medical supervision are in place.

• Communities: Stand with families and commit to protecting the next generation.

Our Mission at The CJ Dickey Foundation

The CJ Dickey Foundation was created out of tragedy, but it is rooted in hope. Our mission is to:

✔️ Educate athletes, parents, and coaches about SCT and SCD

✔️ Raise awareness around athlete safety protocols

✔️ Advocate for systemic change to prevent future tragedies

✔️ Support families impacted by loss

How You Can Help

• Share CJ’s story to spread awareness.

• Encourage testing for athletes and families.

• Support athlete safety initiatives in your schools and communities.

Together, we can ensure that CJ’s legacy is one of change, awareness, and protection for every young athlete. Knowledge is power. Awareness saves lives.

---Disclaimer: The information shared in this post reflects our family’s experience and advocacy. It is intended for educational and awareness purposes only and should not be interpreted as medical or legal advice. As litigation is ongoing, statements are based on our understanding and beliefs. For medical guidance, please consult a licensed healthcare provider.